NEC UK is the first charity in the UK exclusively for the condition Necrotising Enterocolitis (NEC). Our organisation is parent led and primarily offers support to families affected by the condition at any stage of their journey. In addition to family support our objectives are to support further research and studies into NEC, to raise awareness of NEC while also developing good relationships with experts, care providers and other organisations to give NEC a platform to be heard and improve the outcomes for babies affected by Necrotising Enterocolitis and their families.
NEC UK Intend to deliver our charitable objectives with measurable impact, we will create a strong sense of direction, focus and clarity.
To Support for Families NEC UK offers emotional and practical support to families affected by NEC at any stage of their journey and of different outcomes. Here are some of the ways we do this:
Peer to peer support in the “NEC UK Charity Support Group” which we use on the Facebook platform. The group is for families only and posts are not visible to anyone outside of the group.
E-mail support at [email protected]
NECessaries parents care packs which contain emergency food, toiletries and other essential supplies for both parents in hospital. Designed by parents for parents.
Breast Pumps are brand new manual pumps in sealed boxes, available to Mums of babies who have a medically identified risk of developing NEC and for Mums of babies recovering from NEC to continue expressing while away from the hospital. Please note our pumps are not intended for hospital use.
Nappy Support assistance for babies and children identified as having an above average usage of nappies as a result of NEC and who meet the charity’s criteria.
Bags of Love are designed for bereaved families and contain keepsake items such as a small teddy bear, a wooden heart that baby’s name or a short message parents can write on, personalised word art in a card, a heart shaped candle and some flowering seeds to sow because together we remember with you.
Kangaroo Care Pack: Here at NEC UK we encourage and promote Kangaroo Care by sending our local Hospitals Kangaroo Care Hampers containing the essential items to promote this.
