WSUK became a registered charity in June 2013. We work closely with the 2 hospitals that run the WS clinics in Birmingham and host an annual conference for those affected, their families, support teams, medical professionals and researchers.

WSUK as a national charity help fund research and provide support for those affected by the condition and their families. We feel the more people that know about WS the better; and will endeavour to make sure that hospitals, Doctors and other health care professionals are aware of this site.

Our aim is to raise as much awareness of this syndrome as we can.

Wolfram Syndrome UK is a patient orientated organisation; who take pride in helping to offer high quality support services, facilitating access to the WS specialist clinics operated by NHS England. During these clinics those affected and their families can be seen by medical experts to help maintain a good quality of life and receive the most up to date treatments and advice, which is then shared back to a patient’s local care team.