Our community group helps those with a diagnosis of, or with symptoms of, Ehlers-Danlos syndrome and hypermobility. We exist to raise the awareness of these conditions as there is currently no medical pathway and therefore sufferers often spend years untreated or unbelieved before they get diagnosed. We provide support in helping to get a diagnosis, management of the condition and by providing opportunities for sufferers to share experiences. Our aim is to improve the quality of life of those suffering with these conditions - both physical and mental health.
We provide coffee meetings, arrange talks and social events, attend events to raise awareness, provide funding towards sufferers taking part in activities, and are engaged with a number of charities linked with other conditions that have an association with EDS such as autism, ME / CFS. We are also involved in education and the medical profession as well as transportation - all with the aim to improve the quality of life of those suffering and to reduce the suffering of those with the condition in the future.
