Sussex Association for Spina Bifida and Hydrocephalus

Sussex Association for Spina Bifida and Hydrocephalus

At a glance


  • Physical disabilities

Other details

Geographical remit: 


Our mission is to support all people in Sussex affected by spina bifida, hydrocephalus and other related conditions to achieve their potential, whilst promoting understanding of, and respect for, those with these conditions.

  • We have over 50 years’ experience in supporting and developing the health, wellbeing  and life opportunities of people with spina bifida, hydrocephalus and other related conditions
  • As well as giving our service users the skills and opportunities to find employment we provide job opportunities through our unique Saspire scheme
  • In supporting people with these life-challenging conditions, we help them participate fully in community life through networks, events and social activities
  • We don’t take a ‘one size fits all’ approach. We consider each case individually, offering high quality options that fully meet our service users’ needs
  • By understanding the conditions we can offer expert advice and experience responding to needs and working and interacting with people with spina bifida, hydrocephalus and other related conditions.
  • Strong involvement within communities assists our work to increase their knowledge and awareness of these conditions and their respect for people living with them.


We achieve our mission by: -

Offering support through our networks or directly, focused on increasing the emotional resilience of families and carers; and by providing adult and family residential breaks.

Combating social isolation through building social and independent living skills, providing networking opportunities and offering inclusive services

Supporting development and learning for children young people and adults meeting the challenge of living independently, developing skills for employment and through times of change.

Building awareness and understanding in our community through events, community fundraising and networking.

Providing information, advice and advocacy for people with spina bifida and other related conditions and their families.

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