SpotlightYOPD

SpotlightYOPD

At a glance

Causes

  • Health and well being / research and care
  • Physical disabilities

Other details

Organisation type: 
Charity
Geographical remit: 
Local

Objectives

Spotlight YOPD aims to increase awareness and provide support to individuals impacted by Young Onset Parkinson's Disease. It is a charity specifically for those with YOPD, managed by individuals with YOPD. Our organisation is based in the UK but has a worldwide impact.

Activities

Parkinson’s is not one disease and there is not one single solution. We are realistic in believing that before we expect cures, we need to identify causes for the various types of Parkinson’s. As a charity with a global influence and reach, Spotlight YOPD is keen to share knowledge, putting equal weight on scientific research and patient experience.

We would also like to see more emphasis on preventative measures as well as a more holistic approach to helping people live better with the condition today. A personalised approach is required, enabling YOPDers to make the best decisions for themselves, their family, and their future. We believe in the power of partnerships and the patient voice. The YOPD community holds the key to a different approach.

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