Somerville Heart Foundation

Somerville Heart Foundation

At a glance

Causes

  • Health and well being / research and care

Other details

Organisation type: 
Charity
Geographical remit: 
National - Britain

Objectives

Somerville Heart Foundation is the only UK-wide charity dedicated to supporting young people and adults born with all forms of heart conditions, known as Congenital Heart Disease (or CHD).

We provide support, advocacy, communication, and a community for those we are here to help. We also campaign for their rights to receive excellent medical care to enable them to lead happy, healthy, and longer lives.

Our beliefs…

At Somerville Heart Foundation, we believe that every adult born with a congenital or inherited heart condition in the UK should have:

  • Access to all necessary healthcare, delivered by appropriate specialists, quickly and easily.
  • This includes access to mental health and psychological support where needed.
  • An understanding of their condition to confidently make lifestyle choices and be joint decision-makers in their healthcare if they so desire.
  • Have their voice heard in decisions made about healthcare delivery that affects their care. “Nothing about us, without us.”
  • Knowledge about living with their condition, from driving, pregnancy, menopause, exercise etc.
  • The confidence to talk about their condition to family, friends and in the workplace when required.
  • Be recognised as someone with a long-term condition in the same manner as diseases such as diabetes.
  • The ability to live their best life.

Activities

Information and resources

Peer Support

Mental Health and Wellbeing including counselling

Quarterly newsletter and leaflets

Somerville Community Events:

Annual Face to Face Hearts Together conference,

 Online Coffee and Chat sessions

  • Focus groups:
  • Growing older with a heart Condition
  • Menopause
  • Transition from children's to adult service

Webinars:

  • Medications
  • Finance
  • Exploring Benefits
  • Transplant and Heart Failure - your questions answered
  •  'Let's talk money' webinar 

Young people transferring from Children’s to Adult Services

Growing Older With A Heart Condition

Menopause

Other Support:

Employment law specialist

  • Travel information and insurance
  • Life insurance
  • Small hardship grant application
  • Self-test Coaguchek machines

No current opportunities

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