Sickle and Young Stroke Survivor

Sickle and Young Stroke Survivor

At a glance

Causes

  • Black, asian and minority ethnic groups
  • Children / families
  • Counselling / advice
  • Health and well being / research and care
  • International development
  • Local / community
  • Mental health
  • Physical disabilities
  • Social care
  • Training / employment support
  • Young people

Other details

Geographical remit: 
Regional

Objectives

We support and educate children, young people and their families affected by Sickle Cell disorders and Childhood stroke and Moyamoya syndrome in the UK. 

The support we provide is holistic and creates avenues for reducing isolation and building emotional resilience for children, sharing of experience, and creating awareness in the community.

Activities

 

  • SCYSS’s Club, Youth forum and Tutorial support
  • Family drop ins and hospital visits
  • Lobbying government for change and voicing opinions of young people
  • Community outreach
  • Public and patient involvement in healthcare and research
  • Long term conditions Training
  • Sickle cell in Africa projects

Our mission is to prevent strokes in children, and reduce its effects through creating awareness, providing services, campaigning, education and research.

 

No current opportunities

Search for volunteer opportunities with other organisations.