SEDS

SEDS

At a glance

Causes

  • Black, asian and minority ethnic groups
  • Campaigning
  • Children / families
  • Education
  • Health and well being / research and care
  • Local / community
  • Men
  • Mental health
  • Older people / later life
  • Physical disabilities
  • Social care
  • Sports
  • Voluntary sector support
  • Women
  • Young people

Other details

Geographical remit: 
Regional

Objectives

We actively support people in Sussex with Ehlers-Danlos syndromes and hypermobility spectrum disorder or are symptomatic to live a more fulfilled life by being there providing signposting resource in education, health and social care. . Helping with activities, therapies  and hobbies that we used to do or want to do now within our scope. 

Activities

Supported EDSHSD safe activities , therapies face 2 face or now online. Provide support meetings, support awareness and acceptance in education, health and social care and transport. Public and professional awareness 

No current opportunities

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