PSC Support is the only UK charity dedicated solely to helping people affected by the rare, immune-mediated liver disease, primary sclerosing cholangitis (PSC).
Our work is important because PSC affects people of all ages, and has no medical cure. Some people develop advanced liver disease and require a life-saving liver transplant. PSC is a premalignant condition; people with PSC are at higher risk of developing cancers such as bowel cancer, bile duct cancer and gall bladder cancer.
Our vision is to see a world without PSC
Our mission is to improve the lives of people with PSC through support, education, research and advocacy:
we provide up to date and accurate information for anyone affected by PSC
we help people with PSC connect with others sharing similar experiences
we provide support to patients and their families
we fund vital medical research
we organise meetings including questions and answers sessions, with hospital consultants with a special interest in PSC
we promote awareness and education about PSC to the medical community
we advocate for PSC patients for improved clinical care
we advocate for PSC patients regarding liver transplant policy and services
we promote organ donation
We're very a small charity. So small, we don't have offices and use cloud based software to work and communicate from home.
We're passionate about improving the lives of people affected by PSC and are proud to punch way above our weight.
This is what we do:
publish regular news bulletins for our members and maintain a website containing details of the latest PSC research and developments, shared experiences from fellow PSCers, friends and family, fundraising activities, and information on our health and managing our symptoms.
arrange national Information Days, giving people affected by PSC the opportunity to meet others affected by PSC and listen to the very latest research updates from leading PSC authorities.
provide support through online communities.
run a Helpline enabling people affected by PSC.
fund PSC research through a dedicated peer-reviewed PSC research programme.
work closely with world authorities on PSC to support and facilitate PSC research.
promote awareness and education about PSC to the medical community.
advocate for PSC patients to improve clinical care.
advocate for PSC patients regarding liver transplantation.
