We support all those affected by Prader-Willi syndrome, a rare condition causing a near-permanent state of hunger, learning and physical disabilities. We are a small charity providing a vital lifeline to families across the UK.

Our services include:

• A helpline for those in crisis or needing help, mediation and support
• An information hub providing everything you need to know about PWS
• A regional network of peer support groups, with a programme of family events
• Training for professionals working with those with PWS
• Funding and support for research