Polymyalgia Rheumatica and Giant Cell Arteritis Scotland (PMR-GCA SCOTLAND)

Polymyalgia Rheumatica and Giant Cell Arteritis Scotland (PMR-GCA SCOTLAND)

At a glance

Causes

  • Health and well being / research and care

Other details

Geographical remit: 
National - Scotland

Objectives

The aim of the Charity is to provide support for people who have Polymyalgia Rheumatica and/or Giant Cell Arteritis, their relatives and carers by:

  1. offering a point of contact for people who have Polymyalgia Rheumatica and/or Giant Cell Arteritis and their relatives;
  2. staying in communication with people coping with PMR and/or GCA who are unable to attend the meetings;
  3. helping members to keep abreast of current thinking and management of PMR and GCA;
  4. raising awareness of PMR and GCA;
  5. promoting research;

When people in Scotland find the charity, either through the website or phone, the relief to know that what they are experiencing isn't unique to them in palpable. We need to reach everyone who needs us but because this is a little known (but not uncommon) condition, hitting the spot remains a challenge.

Activities

  • We have a Helpline manned by volunteers who all have experience of the conditions.
  • We run a well used and constantly updated¬†website with online contact forms.
  • We send regular newsletters to our membership (currently approximately 350) and have an annual meeting and AGM with qualified speakers, which are well attended.
  • We currently have three patient support groups in Scotland (Dundee, Edinburgh and Glasgow) when members have the opportunity to share experience and find out what is new.
  • Where we can, we support research into the conditions both in terms of patient involvement and financially.

No current opportunities

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