PMRGCAuk

PMRGCAuk

At a glance

Causes

  • Health and well being / research and care

Other details

Geographical remit: 
National - Britain

Objectives

Polymyalgia Rheumatica (PMR) and Giant Cell Arteritis (GCA) is linked rheumatic conditions that are little known by the public and have been poorly understood in medicine, although scientific interest in them is now increasing. They can strike separately, but often together and usually affect older people. They cause severe pain and discomfort and the standard treatment is long-term use of corticosteroids. Undiagnosed and untreated GCA can lead to catastrophic sight loss, although this is easily prevented if caught in time.

Polymyalgia Rheumatica & Giant Cell Arteritis UK (PMRGCAuk) is a registered charity established to meet the needs of people with these debilitating conditions, their friends, families and helping professionals.

What we offer

We offer information and support at all stages – from diagnosis through to recovery. We provide information packs, a helpline, newsletters, support groups around the country, and a web forum where you can share your experiences and learn from other people with PMR and GCA.

Above all, we offer hope!

 

Activities

PMRGCAuk

  • Strives to promote knowledge and awareness amongst the public, to raise the profile of the two illnesses in the health and medical professions, and in employment.
  • Enables people with PMR and GCA to make contact with each other through group meetings and our internet forum.
  • Provides a telephone helpline.
  • Campaigns for fast and effective diagnosis and treatment to prevent sight loss resulting from undiagnosed GCA.
  • Serves as a co-ordinating body for established local Support Groups.
  • Encourages the setting up of new groups.
  • Works closely with other supportive organisations such as Arthritis Care and Arthritis Research UK
  • Promotes encourages and participates in research into PMR and GCA.

PMRGCAuk has an active role in ensuring that sufferers are not alone in enduring the trials and tribulations brought about by the symptoms and medication of the illnesses.

No current opportunities

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