Pitt Hopkins UK helps families with a child with Pitt Hopkins and Pitt Hopkins Like Syndromes in the UK and Eire.
We have a Online google support group where we can share and learn from one another.
We have organised days where people can get together and learn more about PTHS from the speaker and from shared experiences .
We try to raise awareness amongst the general public but particularly amongst health professionals. and try to do this with a UK website and Facebook page for the UK and also for Raising Awareness.We have helped with an online questionnaire to learn more about Pitt Hopkins Syndrome.
We raise funds to help with research into Pitt Hopkins Syndrome and to enable us to meet together.