Our main aim is to facilitate support and advice to people diagnosed with pemphigus or pemphigoid who live in the UK. None of us are experts, but, as fellow patients or carers, we have a lot of experience and empathy to share.

We connect people with these rare autoimmune conditions via Facebook and Zoom and provide information on our very full website. WE also produce a bi-annual magazine.

We also aim to expand awareness of these diseases in order to speed up diagnosis and improve treatment options.

We try to keep up-to-date on any research or medical information related to the diseases, but we do this on an ad hoc basis and only have limited access to medical experts on a very informal basis at the moment.

We also work with the medical community as patient representatives in several studies and programmes.​