Pelvic Radiation Disease Association

Pelvic Radiation Disease Association

At a glance

Causes

  • Health and well being / research and care

Other details

Organisation type: 
Charity
Geographical remit: 
National - Britain

Objectives

Pelvic Radiation Disease (PRD) is a long-term side-effect (‘late effect’) of pelvic radiotherapy treatment affecting an estimated 100,000 people in the UK.  People affected by PRD often have poor quality of life due to problems with bowel, bladder and/or sexual function and other symptoms such as chronic pain or swelling, as well as mental health difficulties.

PRDA is a small UK charity whose objectives are to give a voice to people affected by PRD, and to see that the effects of PRD are minimised, that people affected PRD given the best possible care and treatment, and that PRD is accepted as a serious problem and given the attention it deserves.

PRDA aims to have an impact by:

  1. Providing and facilitating direct support and information to people affected by, or at risk of, Pelvic Radiation Disease (PRD);
  2. Providing a voice for people affected by PRD;
  3. Influencing decision-makers to achieve adequate, dedicated funding for PRD services across the UK;
  4. Working with charity, professional organisations, NHS and other partners to improve health and social services for people affected by PRD;
  5. Working with charity and professional organisation partners to improve professional awareness and education on the prevention and treatment of PRD;
  6. Influencing research and trials that address issues to do with PRD.

Activities

For people affected by Pelvic Radiation Disease, we provide email support and information, and support group meetings. We hold an annual conference and produce a regular newsletter and provide information via our website. We maintain a database of professionals and organisations that offer services for Pelvic Radiation Disease, so that people needing help can be signposted to local services.

For health professionals, we published the Pelvic Radiation Disease Best Practice Pathway in 2022. We support those interested in Pelvic Radiation Disease to meet in order to improve education, research and clinical care. We regularly provide 'experts by experience' speakers for medical conferences, to help raise awareness of the effects of Pelvic Radiation Disease on people’s lives and what can be done to help.

We work in partnership with other cancer charities and health organisations in order to reach as wide an audience as possible, and give more of a voice to people affected by this devastating condition.

Current opportunities

The Pelvic Radiation Disease Association (PRDA) is looking for a Chair of Trustees to provide strategic leadership for the charity, working in...