Pelvic Radiation Disease (PRD) is a long-term side-effect (‘late effect’) of pelvic radiotherapy treatment affecting an estimated 100,000 people in the UK. People affected by PRD often have poor quality of life due to problems with bowel, bladder and/or sexual function and other symptoms such as chronic pain or swelling, as well as mental health difficulties.
PRDA is a small UK charity whose objectives are to give a voice to people affected by PRD, and to see that the effects of PRD are minimised, that people affected PRD given the best possible care and treatment, and that PRD is accepted as a serious problem and given the attention it deserves.
PRDA aims to have an impact by:
For people affected by Pelvic Radiation Disease, we provide email support and information, and support group meetings. We hold an annual conference and produce a regular newsletter and provide information via our website. We maintain a database of professionals and organisations that offer services for Pelvic Radiation Disease, so that people needing help can be signposted to local services.
For health professionals, we published the Pelvic Radiation Disease Best Practice Pathway in 2022. We support those interested in Pelvic Radiation Disease to meet in order to improve education, research and clinical care. We regularly provide 'experts by experience' speakers for medical conferences, to help raise awareness of the effects of Pelvic Radiation Disease on people’s lives and what can be done to help.
We work in partnership with other cancer charities and health organisations in order to reach as wide an audience as possible, and give more of a voice to people affected by this devastating condition.
The Pelvic Radiation Disease Association (PRDA) is looking for a Chair of Trustees to provide strategic leadership for the charity, working in...