Pelvic Radiation Disease Association

Pelvic Radiation Disease Association

At a glance

Causes

  • Health and well being / research and care

Other details

Geographical remit: 
National - Britain
Charity registration number: 

Objectives

Pelvic Radiation Disease (PRD) is a long-term side-effect (‘late effect’) of pelvic radiotherapy treatment affecting an estimated 100,000 people in the UK.  People affected by PRD often have a complex set of symptoms affecting the bowel, bladder and/or sexual function for many years after radiotherapy, sometimes only appearing several years after radiotherapy treatment

PRDA is a small UK charity whose objectives are to see that the effects of PRD are minimised, that people affected PRD given the best possible care and treatment, that PRD is accepted as a serious problem and given the attention it deserves.

PRDA aims to have an impact by:

  1. Providing and facilitating direct support and information to people affected by, or at risk of, Pelvic Radiation Disease (PRD);
  2. Providing a voice for people affected by PRD;
  3. Influencing decision-makers to achieve adequate, dedicated funding for PRD services across the UK;
  4. Working with charity, professional organisations, NHS and other partners to improve health and social services for people affected by PRD;
  5. Working with charity and professional organisation partners to improve professional awareness and education on the prevention and treatment of PRD;
  6. Influencing research and trials that address issues to do with PRD.

Activities

For people affected by Pelvic Radiation Disease, we provide a telephone helpline and email support and information, and support group meetings. We hold an annual PRDA Friends' meeting and produce a regular newsletter and provide information via our website. We maintain a database of professionals and organisations that offer services for Pelvic Radiation Disease, so that people needing help can be signposted to local services.

For health professionals, we support those interested in Pelvic Radiation Disease treatment and research to meet in order to improve education and awareness of Pelvic Radiation Disease. We regularly provide patient speakers at medical conferences, to help raise awareness of the affected of Pelvic Radiation Disease on people’s lives.

We work in partnership with other cancer charities and health organisations to further our aims.

Current opportunities

London (West), KT17 9JB or Remote

Become a trustee of the Pelvic Radiation Disease Association and help people affected by Pelvic Radiation Disease, a debilitating long-term side...

Previous placements

  • Trustee