The NCBRS Worldwide Foundation is a nonprofit organization that aims to support and educate families, carers and professionals who work with them. Together we will work to promote awareness and understanding of the syndrome. We will advocate for scientific research that increases the medical knowledge of Nicolaides-Baraitser Syndrome and best treatments.
We aim to assist those affected by providing practical advice, holding annual conferences, raising public awareness of NCBRS and providing grants to NCBRS patients/families. Our long-term goal is to help to fund future medical research studies.
