The origins of Myelopathy.org
Myelopathy.org was founded in 2015. It was the brain child of Dr Mark Kotter, who with the help of Dr Ben Davies, developed the initial information and support platform. At around this time, Iwan Sadler, a CSM patient, frustrated by the lack of support, had founded his own Facebook Support group. Given their common goals, Iwan joined Myelopathy.org to set up and lead Myelopathy.org/support, a support community for patients by patients.
In the time that has followed, Myelopathy.org has continued to grow. The community is made up of members from all over the globe, many of whom have given up their time to promote awareness and support our goals; individuals have come forward to add their expertise.
But we still have a long way to go and we are always looking for more help! If you would like to get involved, please get in touch.
Who we are
Myelopathy.org is a non-profit organisation founded to raise awareness of degenerative cervical myelopathy (DCM) and support patients, carers and professionals who live and deal with the condition.
Myelopathy.org is the only charity in the UK supporting people living with DCM, and thus providing a crucial service and support to those that need it.
Our charitable objectives are to advance health and education in all aspects of Myelopathy in particular by:
1. Supporting and funding scientific research into all aspects of Myelopathy
2. Raising awareness and understanding of the condition
3. Supporting and promoting improved outcomes for patients by bringing together patients, carers and healthcare professionals