At a glance


  • Campaigning
  • Health and well being / research and care
  • Local / community
  • Social care

Other details

Geographical remit: 
National - Britain


We are a network of patients fighting for health equality for Myalgic Encephalomyelitis (ME). We build community and mobilise patients, family, and allies to make ME visible and fight for health equality. We were founded with the belief that while we may find it difficult to advocate for ourselves in the physical world, by making our activism accessible, we can be an unstoppable force.


We focus our efforts in five main areas:

REACH: gain mass and strategic recognition of ME as a debilitating disease suffered by millions by engaging press and developing a wide variety of multimedia education tools.

CONNECT: Grow a thriving community of support, friendship, fun, creativity, and purpose.

ADVOCATE: Mobilise patients and allies to advocate for more public investment in research, public awareness, and medical education. Our emphasis is on community organising and local, strategic action in order to build our capacity for national impact.

EDUCATE: Engage doctors, nurses and other health professionals to encourage empathetic, knowledgeable care for all.

INSPIRE: Inspire a new generation of researchers to join this field through our outreach and fellowship programs.

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