The Lymphoedema Support Network

The Lymphoedema Support Network

At a glance

Causes

  • Health and well being / research and care

Other details

Organisation type: 
Charity
Geographical remit: 
National - Britain

Objectives

The Lymphoedema Support Network represents, supports and empowers people affected by lymphoedema, promotes awareness of the condition and works towards appropriate, equitable treatment for all. Lymphoedema is a chronic condition for which there is no cure. The symptoms of Lymphoedema include chronic swelling that develops because of an impaired or damaged lymphatic system that does not resolve or respond to water tablets. But it is much more than just a swelling, it impacts the immune surveillance of the body making those living with it more susceptible to infections such as cellulitis and even sepsis. It also gives rise to skin changes giving the skin the appearance of elephant skin if it is left unmanaged. As well as these physical symptoms the condition and its treatment also have an impact on body image, emotional health and both social and employment life. It is known to have a significant impact on quality of life and can be a very lonely and isolating condition.

  • To provide support for people with lymphoedema
  • To provide information about lymphoedema and its treatment to increase awareness and assist self management.
  • To work towards the availability of better national resources for lymphoedema treatment
  • To maintain contact with health care professionals working in lymphoedema management
  • To promote a network of support groups throughout the UK for people with lymphoedema

Activities

The LSN is the largest information resource for lymphoedema patients in the UK, provides PIF TICK accredited information both online and in paper form, has a YouTube channel providing expert information videos, holds patient conferences, produces a monthly e-newsletter, and a quarterly printed magazine, has a great website and social media presence, provides information for schools and nursing homes, online education for health care professionals and supports a network of local support groups. We have also recently published our first  self-management book.  We also provide an information and support service via telephone, email, letter and social media.

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