Our activity is focused on

• producing well-researched resources for people to use and to pass on
• stimulating the increase and spread of accurate knowledge about Lyme disease and tick borne diseases generally;
• working with government agencies and health professionals to improve provision for Lyme disease patients.

Our core activities include

• Awareness literature. Accredited to the PIF Tick, we produce posters, leaflets and a comprehensive website containing well researched information.
• Running webinars, and pre-Covid an annual conference. Including a variety of presentations from UK and overseas experts, these are also a forum for patients and health professionals to compare notes with peer groups.
• Email help desk for both public and medics answering individual queries.
• Medical conferences and exhibitions. We attend these to raise awareness of the issues amongst health professionals and to provide them with quality information.
• Stimulating research. We undertook a project to define the uncertainties and the top priorities for research. We are now working on another research project to determine a Core Outcome Set for Lyme disease.

Underpinning this activity is a small, dedicated team of volunteers who have all had experience of the disease.