Lyme Disease Action is a small national charity run entirely by volunteers. Established in 2003 we aim to address the current lack of awareness of Lyme disease and other tick-borne diseases amongst both the public and health professionals. Currently many people are undiagnosed, at a considerable cost to the state, health professionals and the patients themselves.
Our mission is to improve the diagnosis and treatment of Lyme disease and tick-borne diseases for patients in the UK and help restore public confidence in the NHS in this area.
Our activity is focused on
Our core activities include
Awareness literature. Accredited to the PIF Tick, we produce posters, leaflets and a comprehensive website containing well researched information.
Running webinars, and pre-Covid an annual conference. Including a variety of presentations from UK and overseas experts, these are also a forum for patients and health professionals to compare notes with peer groups.
Email help desk for both public and medics answering individual queries.
Medical conferences and exhibitions. We attend these to raise awareness of the issues amongst health professionals and to provide them with quality information.
Stimulating research. We undertook a project to define the uncertainties and the top priorities for research. We are now working on another research project to determine a Core Outcome Set for Lyme disease.
Underpinning this activity is a small, dedicated team of volunteers who have all had experience of the disease.
