Immunodeficiency UK, launched on the 1st April 2021, is a charity supporting individuals and families affected by a primary and secondary immunodeficiency in the UK. The charity’s day-to-day operations are funded entirely by donations and grants.
Our aims are to help ensure that those affected by a primary and secondary immunodeficiency have the knowledge needed to manage their condition effectively and to ensure that their health needs are understood and addressed by those involved in policy and delivery of healthcare.
Our history
For the period from 2013 to the 1st April 2021 we were known as the organisation Primary Immunodeficiency UK and managed as part of the charity Genetic Disorders UK.
Our mission is to support the advancement of health and the relief of people affected by primary and secondary immunodeficiency and their families and people responsible for their welfare, including in particular:
(a) by providing assistance, advice or guidance in relation to managing their condition and improving the diagnosis of these conditions, their treatment and the quality of life of those affected;
(b) promoting awareness and understanding of primary and secondary immunodeficiency within the general public and medical profession in order to better understand these conditions and their impact; and
(c) providing a helpline service, events and practical help and advice.
(2) To encourage and support research into the causes, treatments, prevention and cures for primary and secondary immunodeficiency, and to publish the useful results of that research.
