Hereditary Brain Aneurysm Support (HBA Support) provides information and support to people affected by hereditary brain aneurysms and their families.
Everything we do is for the benefit of people living with brain aneurysms patients and their families.
We are a new and growing patient-focused not-for-profit organisation. Our aim is to support people affected by hereditary brain aneurysms, building a community that works with families that have been given a hereditary brain aneurysm diagnosis, or suspect there is a pattern or cluster in their family.
We are raising the awareness of hereditary brain aneurysms as a rare condition to improve and save lives. Working with families and clinicians alike, we help advocate for improved support, better care and more research into this hereditary condition.
We are committed to open and transparent practice and putting in place a robust independent governance structure, which includes a patient forum, an advisory panel, and an executive committee.
We are building a community of people who share experience and insights of hereditary brain aneurysms, building networks, supporting families and together advancing our understanding of the condition as a genetic, life-changing disease.
We will and are collaborating and partnering with patients, clinicians, researchers, health care professionals and wider stakeholders to increase awareness, improve patient care, and save lives.