Haemochromatosis UK

Haemochromatosis UK

At a glance

Causes

  • Children / families
  • Counselling / advice
  • Education
  • Health and well being / research and care
  • Older people / later life
  • Physical disabilities
  • Young people

Other details

Organisation type: 
Charity
Geographical remit: 
National - Britain

Objectives

Genetic haemochromatosis is the UK’s most common inheritable genetic condition, directly affecting over 380,000 people. Although it is commonplace, the condition is significantly under-diagnosed in the UK. The NHS is aware of just 20,000 people with genetic haemochromatosis.

Untreated, the condition can lead to iron overload, where the body is unable to process excess iron. Excess iron is extremely toxic. Genetic haemochromatosis can cause liver disease, cancer, heart disease, chronic fatigue, diabetes, severe joint pain, sexual health issues and neurological issues.

We are the only national charity dedicated to supporting people affected by genetic haemochromatosis and iron overload. We work to raise public awareness, support those affected, stimulate research, and educate healthcare professionals.

Activities

We’re working to ensure that everyone in the UK affected by genetic haemochromatosis has access to high-quality care, as well as support and information to improve their quality of life. We’re seeking trustees who share our vision for a world in which genetic haemochromatosis is detected and treated promptly – a world where early diagnosis saves lives.

We :

  • support anyone affected by genetic haemochromatosis
  • undertake and support medical research
  • raise awareness amongst the general public and clinicians
  • provide education to clinicians and people affected

No current opportunities

Search for volunteer opportunities with other organisations.