Guillain-Barre & Associated Inflammatory Neuropathies (GAIN) is the only charity in the UK that supports people affected by Guillain-Barre syndrome, CIDP and other related peripheral neuropathies. These devastating illnesses can affect anyone of any age at any time; they are not contagious or hereditary. We offer non medical advice and information to patients and their families to give them hope. Our busy volunteers can help with understanding of the illnesses by talking to them using their own experiences.
The charity has a vibrant website and active facebook group, as well as an informative and engaging quarterly magazine. We aim to reach as many people as possible in a manner that suits them.
Working with our volunteers we ensure our information is passed to hospitals and doctors surgeries across the UK so people can access our help. Feedback from those using our information is very positive with many of them raising money to help others. Having reliable information and peer support when your loved one goes from fit and active to paralysed within a matter of days is essential to the recovery of both patient and family. Without our input people would be scared and ill informed relying on search engines to provide often incorrect information.
We also work in collaboration with other neurological charities to raise the profile of neurology on the health agenda.
We have a UK wide network of volunteers who offer peer support through email, phone calls, facebook administration and visits.
Our medical advisory board provide the content for a series of booklets designed to inform and aid recovery.
We operate a 24 hour helpline, manned by volunteers with personal experience of the illnesses.
We have a small number of branches that meet up socially to support each other.
We run regional or national events each year to bring together medical experts, patients, families and other interested parties in an informal setting.
