The Ehlers-Danlos Support UK (EDS UK) was set up in 1987 to support, advise, and inform those living with Ehlers-Danlos syndromes (EDS), a group of genetic connective tissue disorders. Our vision is to improve the quality of our beneficiaries' lived experience. We will achieve this by reducing the time to diagnosis from an average of 10 years to 10 months. We will also work to sustain our members as they manage their condition and their families, colleagues, and friends, all of whom are affected directly or indirectly by these complex and challenging conditions. More than 30 years since its inception, EDS UK remains the only UK charity which exclusively supports and represents people with any type of EDS.
What we do:
