The ED Society

The ED Society

At a glance

Causes

  • Health and well being / research and care

Other details

Geographical remit: 
International

Objectives

The Ectodermal Dysplasia Society is a charity dedicated to improving the health and well-being of people whose lives are affected by Ectodermal Dysplasia (ED).

We support individuals and families affected by Ectodermal Dysplasia, medical professionals, schools, etc., and promote awareness and understanding of Ectodermal Dysplasia to the general public and professionals.

Activities

The Ectodermal Dysplasia Society mission is to promote awareness and understanding of the Ectodermal Dysplasias by providing detailed information and practical advice to those individuals and families affected by Ectodermal Dysplasia, and to the medical professionals, local authorities, etc., who support them in living life to the full.

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