The CGD Society

At a glance

Causes

Health and well being / research and care

Other details

Organisation type:

Charity

Geographical remit:

International

Objectives

Chronic Granulomatous Disorder (CGD) is a life-threatening and life-limiting genetic condition. The CGD Society offers information and support to families and individuals affected by CGD in the UK and around the world.

By sharing the learning and expertise from CGD patients and the medical professionals who treat them, the CGD Society has become the leading global authority on CGD and an organisation that is respected by affected families and medical professionals on an international scale.

Activities

The CGD Society:

Offers direct support to individuals and families affected by CGD through the provision of nursing services, an email and telephone helpline, patient events and financial assistance;
Provides comprehensive and clearly written information on CGD, associated issues and research, that is easily accessible through a variety of media;
Funds pioneering research that will lead to an improved understanding of disease mechanisms in CGD and that may result in the translation of laboratory-based research into clinical benefit and improved quality of life for patients;
Evolves the charity’s relevance to members and the wider CGD community based on ongoing review of the community’s needs.

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