Burning Nights CRPS Support

Burning Nights CRPS Support

At a glance

Causes

  • Campaigning
  • Children / families
  • Counselling / advice
  • Health and well being / research and care
  • Mental health
  • Physical disabilities
  • Young people

Other details

Organisation type: 
Charity
Geographical remit: 
National - Britain

Objectives

Burning Nights CRPS Support is a UK wide charity that works to improve life for those living with Complex Regional Pain Syndrome (CRPS).  As a charity we raise awareness about the condition amongst the public, health and legal professionals by providing CRPS awareness sessions so that patients can be diagnosed quicker to enable treatment to start more rapidly.

Complex Regional Pain Syndrome (CRPS) formerly Reflex Sympathetic Dystrophy (RSD) is a poorly understood condition which affects many people in the UK and across the globe is a painful and debilitating neuropathic condition that affects approximately 5% of all injuries that occur. According to research CRPS affects 1 in 3,800 people in the UK which is approximately 15,000 newly diagnosed cases every year, which doesn’t account for those who may have been undiagnosed or misdiagnosed. CRPS can cause a person to experience persistent, severe and debilitating pain. The condition may develop after an injury, surgery, stroke or heart attack, but the pain is out of proportion with the severity of the initial injury or trauma. The cause of Complex Regional Pain Syndrome isn’t clearly understood and CRPS awareness in the UK is low.

Activities

Apart from the CRPS awareness sessions, we also offer support and detailed information to patients, their families and carers, by way of an evidence based website an online community forum, email support and social media support, an annual national conference, online chat, counselling service, befriending scheme and online support groups. The charity is self-funding and relies entirely on fundraising, donations and contributions.

Current opportunities

Could you use your social media and communications experience to raise the profile of a small charity? Help us to increase our social media...

Are you passionate about supporting volunteers in a small charity?

The Volunteer Coordinators will recruit, support and develop a team of...

Are you an enthusiastic and skilled funding grant writer? Be a part of our small but committed charity as a grant writer volunteer for a national...