The AT Society supports children, young adults and their families whose lives have been shattered by AT (Ataxia Telangiectasia), a complex, rare, degenerative, life-limiting condition for which there is no cure or treatment. We aim to make a positive and lasting difference by significantly improving the quality of life and quality of care for people living with AT, and to actively promote research to lengthen lives
We’re the only charity in the UK providing specialist practical, emotional and therapeutic support for people affected by AT. We do this through a range of activities from running a helpline, outreach, workshops, respite, counselling, specialist medical interventions and tirelessly advocating to ensure the educational, housing, healthcare and benefits needs are met. We also fund research to improve treatments into AT and to find a cure.
