We support everyone affected by aplastic anaemia, and their families and networks, in the UK.
We deliver our vision though two strategies:
1. Enable vital research into the disease and treatments for the causes of aplastic anaemia and other rare bone marrow failures that ultimately leads to the eradication of the diseases.
2. Empowering patients and the communities around them- supporting and advocating for everyone affected so they can lead healthy and fulfilling lives and their experience within the healthcare system is improved.
We: Provide everyone affected by AA and other rare bone marrow failures with the information, and emotional and practical support they need.
Advocate for system change and raise awareness amongst partners and healthcare providers to improve the patient experience.
Initiate ground-breaking research partnerships which lead to improved treatments with better outcomes for patients.
Build and hold an evidence base on this community and its experiences- and the needs they have.
