Action for Stammering Children

Action for Stammering Children

At a glance

Causes

  • Children / families
  • Counselling / advice
  • Education
  • Health and well being / research and care
  • Learning disabilities / difficulties
  • Mental health
  • Young people

Other details

Organisation type: 
Charity
Geographical remit: 
National - Britain

Objectives

ABOUT ACTION FOR STAMMERING CHILDREN

Action for Stammering Children (ASC) commissions the delivery of specialist services that transform the lives of children and young people who stammer. We do this by working with the Michael Palin Centre for Stammering Children in London and by running residential courses in the North of England. 

We are the charity which created and continues to support the Michael Palin Centre for Stammering Children in London. This internationally-recognised Centre runs the UK’s largest specialist service exclusively dedicated to the assessment and treatment of children who stammer from across the UK. We also support projects aimed at boosting the confidence of young people who stammer and, through our inspirational Youth Panel, we make sure young people who stammer have a voice in the direction of our Charity.  

Stammering is a severe communication disability which impairs social, emotional and educational development. Estimates suggest that 8% of children will stammer at some point and approximately 1% continue to stammer into adulthood. Stammering is more common in boys than in girls. It is characterised by repetitions, prolongations and blocking of sounds, and can be accompanied by feelings of isolation, frustration and embarrassment. 

Stammering crosses all races, cultures, religions and social groups. It can conceal intellectual ability, affect educational choices and achievement, result in impaired communication skills and it frequently becomes a focus for teasing and bullying. In severe cases, it may significantly affect a young person’s ability to achieve their potential and to make a full contribution to society as an adult. 

ASC was the inspiration of the late Travers Reid, a successful businessman and a person who stammered, who was determined to help children who stammer throughout the UK. Travers founded the Charity, along with the late Dr Lena Rustin, an insprational speech and language therapist. Following his appearance in A Fish Called Wanda, Michael became Vice President of the Charity and opened the Michael Palin Centre in 1993.

At the core of the Michael Palin Centre’s work is the specialist assessment service for any child or young person in the UK, aged 2-18, who stammers. Both parents attend with their child where possible, so that the stammering problem can be fully assessed in the context of each individual family. Families are seen by two specialist therapists who spend a morning or afternoon with the child and their parents during which they can identify and fully understand the factors underlying the child’s stammer. The assessment has been developed and refined over the last 30 years, and more recently has evolved to be able to offer the service online, ensuring  that we could continue delivering our service through these difficult times.    It is the cornerstone of each child’s subsequent therapy and greatly increases the likelihood of a successful outcome. 

As well as supporting specialist assessments and therapy, the Charity also funds training of speech and language therapists and a programme of research. The training increases the understanding, skills and confidence of speech and language therapists to be able to work with children who stammer. The research programme aims to provide evidence of the efficacy of the therapy as well as to develop understanding of the nature of stammering and we are funding a PhD  looking at stammering and mental health.  

Our Youth Panel is made up of young people who stammer and are keen to support the charity. They meet regularly as a group to work together on awareness raising projects and annually with the board to help shape our strategy. They have recently launched an online game which celebrates historic figures who stammered and regularly act as media spokespeople for the charity. 

 

We have a group of 50 ‘Stambassadors’ – adults, in successful careers, who stammer. These people have all filmed videos talking about their careers and their tips for success. They help to show young people who stammer that anything is possible and that their stammers need not hold them back. Last year we ran a careers evening with our ‘Stambassadors’ and we hope to develop a mentoring programme in the coming years.

Activities

Action for Stammering Children’s Purpose and Activities

The Charity’s vision is a society where children and young people who stammer have the same opportunities and quality of life as their peers.  

 

The Charity’s mission is to ensure that every child and young person across the United Kingdom who stammers has access to effective services and support to help them meet the challenges created by their stammer.

 

To achieve its mission, the Charity undertakes activities and services across the following six key strategic goals:

 

  1. To increase access to effective therapy services for children and young people across the UK who stammer
  2. To empower children and young people who stammer by giving them a voice within our organisation and in society
  3. To assist the parents of children and young people who stammer, so that they are better able to support their child
  4. To improve the ability of speech and language therapists to provide effective services to children and young people who stammer
  5. To promote research into the most effective treatment of stammering in children and young people
  6. To promote awareness of stammering and the impact it has on children and young people’s lives, and to change public perceptions.

 

Our strategic aims in the coming year are: 

 

  1. To increase access to effective therapy services for young children and young people across the UK who stammer
  • We plan to review the lessons learnt from lockdown to identify new ways of delivering our services.
  • We would like to find ways to expand our residential programme across the UK.
  1. To empower children and young people who stammer by giving them a voice within our organisation and in society
  2. Our Youth Panel are embarking on a new volunteering project with Timebank UK.
    • We plan to launch a career mentoring project with our Stambassadors.

 

  1. To assist the parents of children and young people who stammer, so that they are better able to support their child
    • We are planning to launch a parent support group online over the coming months.
  2. To improve the ability of speech and language therapists to provide effective services to children and young people who stammer
  • Online training numbers have been high during the lockdown period and we are looking to maintain this success over the whole year so that more children who stammer have access to the appropriate therapies.
  1. To promote research into the most effective treatment of stammering in children and young people
  • We are actively fundraising for a research priority setting project, in collaboration with the James Lind Alliance in order to focus future research in the sector. 
  1. To promote awareness of stammering and the impact it has on children and young people’s lives, and to change public perceptions
  • Our Youth Panel are planning to visit schools (online where necessary) to promote awareness using our new on-line game ‘Stamback in Time’.
  • We will also be hoping to encourage more schools to become ‘Stammer Aware’.

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