At a glance

Skills

Event management
Social media marketing
Bookkeeping
Office and Administration Management

Where

London, WC1N 1EH

Remote opportunity

Travel limit? This role is remote with occasional meetings normally in London

Time

Either in or out of office hours Estimate of time needed:
3-7 hours / week This role is for a few hours a week with the occasional all day meeting in London

Deadline

30 Jun 2025

Visitors from Fifth Day

Welcome to Reach Volunteering. We are a community and registered charity that connects people, skills and good causes.

To apply for this role, and any other on our platform, you need to be based in the UK, have at least three years of experience using the skills you wish to volunteer in a professional capacity or have lived experience (for trustee roles). Read more about our criteria.

We are looking for a capable and committed Volunteer Administrator to support our board of trustees with essential administrative tasks. Helping us to improve the lives of people living with ciliopathies.

What will you be doing?

Key Responsibilities

Board Governance Support
- Schedule trustee board meetings (quarterly or as needed)
- Manage meeting invites, calendar syncs, agendas, and minute-taking.
- Track follow-up actions and ensure deadlines are noted.
Finance Administration
- Support preparation of financial documents for trustee review
- Liaise with internal and external stakeholders for expense claims and invoicing.
Digital Engagement Monitoring
- Monitor website traffic and engagement via basic analytics.
- Forward any technical issues or content requests to the appropriate team member or service provider.
General Administration
- Maintain document filing and version control on the charity’s shared drive.
- Support ad hoc admin needs from trustees that help reduce their operational burden.

What We Offer

Flexible, remote working
The chance to make a meaningful impact in a small but enthusiastic team.
Experience in charity governance and operations
A supportive environment to grow your skills.

What are we looking for?

Essential:

Strong organisational skills with proven administrative experience
Comfortable working remotely
Ability to use standard products e.g. Excel, Word, Outlook, Zoom, Xero accounting etc.
Ability to work independently and as part of a team.
Excellent written and verbal communication skills.

Desirable:

Understanding of GDPR and data protection principles
Experience working in charitable or nonprofit sector

What difference will you make?

We are a volunteer managed Charity with some big plans. In order to do this we need to free up our trustees time from administration for delivery of some of our new projects. Volunteering for us will help us acheive our goals of improving the lives of people living with ciliopathies.

Before you apply

Please apply through Reach in the first instance with a short cover note detailing why you are interested in the role and your relevant experience.

We welcome applications from individuals with lived experience of ciliopathies or rare conditions, and from all backgrounds.

About Ciliopathy Alliance UK

Causes

Health and well being / research and care

Organisation type:

Charity

The Ciliopathy Alliance brings together patient support groups, researchers, doctors and allied health professionals representing patients and families living with and affected by ...